Kalydeco and Orkambi: Our Cystic Fibrosis Warriors fight for life saving wonder drugs Orkambi and Kalydeco.
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This discussion topic has been automatically created of petition Kalydeco and Orkambi: Our Cystic Fibrosis Warriors fight for life saving wonder drugs Orkambi and Kalydeco..
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#272016-11-14 00:01Everyone needs to have a better quality of life, if there is a drug out there to help these children then they should be entitled to it |
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#282016-11-14 00:05Disgraceful this little girl can't get the meds she needs for her cf |
Guest |
#292016-11-14 01:34Why can't we do everything in our power to give anyone, especially children, the best medical help possible |
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#302016-11-14 12:55Because I have a little friend in Ireland and her name is Chloe Ryan she needs your help please xxxx |
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#32 Re: Re:2016-11-14 20:02Yes they do! They contacted us to sign this petition. (I'm her aunt) |
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#332016-11-14 20:14My daughter Molly is also one of the 18 children who should get Kalydeco. Please keep signing x |
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#352016-11-14 20:39I signed because they are children just starting their life's and it shouldn't have to be like this they should receive the drug without fighting for it |
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#362016-11-14 20:46Friends. The children are our future. We are supposed to look after them and protect them. |
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#37 Re: Re: Re:2016-11-14 20:52Great! Thank you xxx |
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#382016-11-14 20:56Just trying to help all the children whom is suffering from this terrible illness. |
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#422016-11-14 21:30Because every sick child should b given the drugs that are available to improve their quality of life if they have a long term illness |
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#432016-11-14 21:39My daughter aged 4 needs this drug to make life changing difference to her beautiful life my moos xxxx |
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#472016-11-14 22:29Because we as a country should value or kids livestream do everything we can to keep them healthy and alive |
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#492016-11-14 22:47for our buddy Eadaoin and all who have C.F. This treatment is compulsory, not a luxury. |
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#502016-11-14 22:53A child's health and quality of life can't, and should never, be measured by monetary cost |
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