LetLiamLive
Quoted post
|
Vivian |
#28 For the English-Speakers...2013-06-14 04:22 Liam's family: N'hésitez pas d'utiliser/modifier à votre besoin SVP ... Please feel free to use/edit as necessary! Liam has SMA - Spinal Muscular Astropy - ISIS Pharmaceuticals has an experimental drug called SMNRx that can save his life! The family is using this petition to pressure ISIS into allowing them to have the three experimental doses of SMNRx for Liam - the sooner the better as it is imperative that he be treated early on. Special authorization for this treatment has been granted to the family through Health Canada and the SAP program ( http://www.hc-sc.gc.ca/dhp-mps/acces/drugs-drogues/sapfs_pasfd_2002-eng.php ) - HOWEVER - ISIS has not accepted the authorization! This petition is asking ISIS to PLEASE ACCEPT for Liam to receive this very important medication ASAP! |
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Yan Défossés The author of this petition |
#30 Thank you!2013-06-15 02:13:40 |
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Promote petition "LetLiamLive" on this listTo have Governor Wes Moore removed from office
Governor Wes Moore is not working for the people of Maryland. He is trying to put the Red Line in Baltimore and we have enough transportation. The DDA for special needs children, he is not supportive of and taking away this opportunity for disability people. He is not listening to the people of Baltimore, Carroll and Frederick Counties on a power line that will disrupt the way of life for these communities. He put the State of Maryland on a 4 billion dollar deficit within 3 months of him becom...
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