Kalydeco and Orkambi: Our Cystic Fibrosis Warriors fight for life saving wonder drugs Orkambi and Kalydeco.


Guest

/ #61

2016-11-15 10:12

For my 2 year old granddaughter
I aslo as recommended wrote to my MP who in avery polite long letter containing many excuses they advided this issue is absolutly nothing to do with the goverment at all and they are unable to help or get involved
Very disapointing when smokers drug adicts and obese people get medication and surgey with no questions asked and without having to justify the treatment they recieve
These people have chosen lifestyles which have caused their ill health children with CF have no choice in their condition but are denied life chaning drugs i find this appauling and unfair